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Author: Irene Gebuis

Towards the Common Data Model for an Intensive Medicine Data Space in Europe

Authors: Carlos Luis Parra-Calderón, Celia Alvarez-Romero, María González-López, Silvia Rodríguez-Mejías, Kirsten Colpaert, Felix Balzer, Boris Delange, Marc Cuggia, Denis Delamarre, Christel Daniel, Maxim Moinat, Jan van den Brand, Michel E. van Genderen, Lucas Fleuren, Christian Jung.

Published in Studies in Health Technology and Informatics – Ebook – Volume 327: Intelligent Health Systems – From Technology to Data and Knowledge

Abstract

This work aims to identify the Key Research Areas for building and deploying the semantic interoperability framework for the Intensive Medicine Data Space in Europe. A set of European experts defined four research areas and associated challenges: i) to characterize the value of Common Data Models, vocabularies and standardized data elements for creating the foundation for the standardization of Intensive Care Unit (ICU) data sets, ii) to derive the Common Data Model ensuring seamless data interoperability supporting the querying and access to high-quality, multi-modal data located on federated nodes according to the FAIR principles, iii) to define and support the data standardization process enabling efficient secondary use of ICU data set during the execution of key decision support use cases through the Intensive Medicine Data Space in Europe and beyond, and iv) to define requirements for anonymization and pseudonymization for the good balance between data protection and innovation.

Read the whole publication here.

Source: IOS Press Ebooks

Data Driven Healthcare

Date: June 5, 2025
Location: De Doelen, Rotterdam, The Netherlands
Spoken language: Dutch

At the Data Driven Healthcare event, you’ll hear all about the latest developments in the field of Healthcare & AI. The question of how to approach this responsibly is essential and will not be left out.

Which challenges in healthcare can we solve with data and AI — and which ones can’t we? How do you approach this? And what are the dilemmas healthcare institutions need to take into account?

In a panel discussion — featuring, among others, INDICATE Co-Lead Michel van Genderen — these topics will be explored. Different perspectives and interests will be represented in the conversation.

Responsible AI in Health Care

Date: September 11, 2025 – September 12, 2025
Location: Hilton Rotterdam, The Netherlands

Artificial Intelligence (AI) continues to impact society in various and profound ways. It is inevitable that health care will face significant changes through the introduction of AI systems that are intended to support the health care system with diagnosis, treatment decision-making, hospital management, medical research and development, nursing care, and the health infrastructure (homecare, insurance etc.) more broadly.

The conference ‘Responsible AI in Health Care’ will clearly map how the introduction of AI in medicine unfolds, which aspects of the health care systems will be impacted most, and how this impact will unfold. First and foremost, it intends to discuss in depth, the question how to shape this transition in a responsible way.

Establishment of the Data Protection Workgroup

The INDICATE Data Protection Workgroup has been established. 

The responsibilities and tasks include:

  • Data security and privacy – Oversee the design and implementation of the project’s data management processes, ensuring strong data protection and privacy protocols. 
  • Regulatory compliance – Advise on compliance with the General Data Protection Regulation (GDPR) and other relevant national or European data protection laws. 
  • Risk assessment – Identify potential data security risks, propose mitigation strategies, and support the development of safe data-sharing infrastructures across European ICUs.

Communication Network established

Within the INDICATE consortium, we have established the Communication Network, a dedicated group that meets every three months for one hour to discuss and coordinate our communication efforts.

During these meetings, we cover:

  • Content planning and dissemination strategies
  • Updates on Work Package (WP) outcomes
  • How to engage with journalists and the media on our topics
  • Key themes from our communication strategy

If you’re involved in INDICATE and would like to contribute to the Communication Network, you can sign up by emailing maaike@indicate-europe.eu.

We will be scheduling the upcoming meetings for Q2, Q3, and Q4 soon. Stay tuned for updates!

Driving Innovation in Health Data and Digital Health

Interesting event for Indicate partners!

EIT Health 2-day event in Brussels 04-05 March on the access/share/use of data.

Driving Innovation in Health Data and Digital Health

Two Days, Two Perspectives: Empowering Healthcare Providers and Start-ups 
to Shape the Future of Digital Health and Innovation.

Read more or register for the 2-day event here.