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Metadata standards, cataloguing workflows and examples of best practices

The fifth INDICATE training session brought together participants from across the consortium to understand the role of metadata in supporting interoperability, data discovery, and federated research across institutions.

Led by María González-Lopez and Paloma Bravo del Cid from the Computational Health Informatics Group at Virgen del Rocío University Hospital, the training focused on metadata standards, cataloguing workflows, and best practices within the INDICATE framework.

A key message throughout the training was that metadata is what makes health data discoverable, understandable and reusable across institutions. Participants explored how researchers often encounter datasets from multiple hospitals without knowing how the data were collected, whether they can be combined or even if they are allowed to access them. 

Metadata provides the answers to these questions by describing what a dataset contains, how it was created, under which conditions it can be used and how it can be accessed. Rather than being administrative overhead, metadata forms the foundation of the INDICATE federated catalogue and enables hospitals and researchers to collaborate without sharing patient-level data.

The session concluded with interactive breakout rooms, where participants took on the role of the local INDICATE data provider team for a fictional university hospital. Working with a realistic case study, they assessed whether the hospital’s existing OMOP database, ETL process and ICU data were ready to support a federated study on early organ failure in patients with suspected sepsis. 

By reviewing governance, metadata, data quality and technical readiness, each group determined whether the hospital was ready to participate or which improvements were still needed. The exercise highlighted that successful federated research requires more than available data. It depends on well-documented metadata, robust data quality and close collaboration between clinical, technical and governance experts.

INDICATE Communication Network meeting

The INDICATE Communication Network Meeting, organised by Work Package 5, will take place on 9 September 2026, from 12:30 to 13:30 CEST.

During the meeting, participants will receive the latest updates on the development of the INDICATE platform, educational activities, and the communication materials available to support the project.

The session will also offer an opportunity to exchange experiences and discuss how INDICATE is being communicated within different organisations. Participants are encouraged to share their ideas and provide feedback on the communication materials and support they would find most valuable.

Want to attend the meeting? Please let us know by contacting us via info@indicate-europe.eu.

Programme INDICATE Consortium Meeting 2026

Preliminary programme

INDICATE Consortium Meeting 2026

We are excited to invite you to the official Consortium Meeting of the INDICATE project, taking place from 14 till 16 September 2026 in Rome, Italy. This meeting will be graciously hosted by our partner, Fondazione Policlinio Universitario Agostino Gemelli IRCCS.
 

As we are in September 2026, approximately halfway through the project, this meeting will focus on reflection and forward planning. We will review key achievements, such as the first use case going live, as well as main challenges, including updates on communication and education.


Looking ahead, we will focus on the second half of the project. The session will zoom in on upcoming deliverables and milestones, progress on data provider onboarding, and the next steps in establishing the legal entity that will operate the infrastructure.

Register here

Program Monday, September 14

12.00 – 13.00 CEST

Arrival and Networking

Walk-in Lunch – Light Italian Lunch

13.00 – 17.15

Looking Back

  • Reflection on the first two years of INDICATE
  • Main achievements, lessons learned
  • Progress across all work packages: all WP leaders
    are invited to present
  • Alignment on priorities for the next phase of the project

External keynotes by

Prof. Filip Haegdorens, University of Antwerp (Belgium) and Mr. Michael Beil, Doctors (United Kingdom)

Prof. Filip Haegdorens
University of Antwerp (Belgium)

Mr. Michael Beil 
Doctors (United Kingdom)

20.00

Dinner

Da Romolo alla Mole Adriana
See: 
https://daromoloallamoleadriana.it/ 
San Peter area

Program Tuesday, September 15

08.30 – 09:00 CEST

Walk-in coffee

    09.00 – 12:00

    Solving challenges together

    • Interactive workshops focused on the alignment of work packages and the overall roadmap
    • We will look into the interdependencies between WP’s
    • Next steps in the data provider onboarding process look, any implementation challenges
    • Communication and dissemination strategy
      12.00 – 13:00

      Lunch

      13.00 – 16:00

      Short presentations by WP-leaders focusing on:

      • Main achievements
      • Lessons learned
      • Key challenges
      • Priorities for the next phase
      WP1: Project management
      • Complex project planning – new phase
      • Needed alignment between the WP’s: all WP’s depend on each other – How do we manage that?

      Lisanne van Prooyen-Schuurman
      Project Manager INDICATE
      Erasmus MC

      WP2: Common data models and vocabularies
      • Development of the Data Provider onboarding process and support
      • Handbook 
      • Data provider Support Group

      Celia Alvarez Romero
      Researcher
      Virgen del Rocío University Hospital
      Andalusian Health Service (SAS)

      WP3: Governance, Business Models and Legal and Ethical Framework
      • Sustainability INDICATE after the ‘project’ finishes
      • Development of the INDICATE business model

      Mark Driessen
      Manager Digital Health
      KPMG

      WP4: Technical infrastructure

      • Production version of the first plateau of INDICATE
      • What does the process of the onboarding of data providers and data users look like

      Bert Cappelle
      Data Engineer
      UZ Ghent

      WP5: Dissemination, Exploitation, and Communication

      • Maria: overall WP5 – outcomes of Brussel meeting
      • Maarten: educational sessions
      • Maaike: impact plan INDICATE regarding communication and dissemination
      • Design of the flow of onboarding processes / Demo

         

      Maria Theodorakopoulou
      President
      Hellenic Society of Intensive Care Medicine
      ______________________________

           

      Maarten Ligtenberg
      Co-founder
      Cradeq
      ______________________________

       

      Maaike van Zuilen
      Communication Advisor
      Philogirl

      WP6: Clinical Demonstrations

      • Use case development / deadlines
      • Alignment of WP6 with WP4 and WP2

      Marcel Giemsa
      Research Associate
      University Hospital Düsseldorf

      18.00 – 20:00

      Group activity

      20:00

      INDICATE dinner (covered by central budget)

      Hotel Orazio Palace Rome | Ozio Restaurant | Luxury Hotel Rome

      Ozio Restaurant
      See: 
      https://www.hoteloraziopalace.it/en/ozio-restaurant/

      Program Wednesday, September 16

      08.30 – 09:00 CEST

      Walk-in coffee

        09.00 – 12:00

        What does the FUTURE of INDICATE look like? 

        • Interactive session dedicated to sustainability beyond the project
        • Governance
        • The future organisational and business model
        • Defining the roadmap towards long-term exploitation of INDICATE
          12.00 – 13:00

          Closing Lunch

          Venue – Fondazione Policlinico Universitario Agostino Gemelli IRCCS

          Largo Agostino Gemelli, 8, Roma RM, Italië
          00136 Roma

          Italy

          Website: https://www.policlinicogemelli.it/en/

          How to reach the venue:
          The campus is located in the north-west side of Rome and it includes the Policlinico (the Hospital itself) and the University. For the INDICATE consortium meeting, please use the University Entrance to find your way to the conference room – Room 202, School of Economics:

          Entrance address:

          • Largo Francesco Vito, 1, 00168 Roma RM (University entrance)

          Find more details about the venue here.

          Continue reading

          INDICATE consortium reviews progress and prepares for next project phase

          On 9 July, the INDICATE consortium came together for its monthly online update meeting to discuss project progress, upcoming milestones and the next steps towards expanding the INDICATE platform.

          Preparations for the Rome Consortium Meeting

          The coordination team shared the latest updates on project management and preparations for the upcoming consortium meeting in Rome, taking place from 14–16 September 2026. More than 50 consortium members have already registered, with over 35 participants expected to attend in person. More about the Rome meeting can be found here.

          Partners were encouraged to join the meeting onsite, as the programme will focus on preparing the next phase of INDICATE and strengthening collaboration across work packages. The consortium also received an update on the first reporting period. While the technical report has been finalised, the financial review is currently being completed in close collaboration with the European Commission.

          Work Package 5 abstract accepted

          A major milestone was celebrated during the meeting: the abstract entitled “An Assessment Framework for Evaluating AI and Federated Learning Training in Intensive Care” has been accepted for presentation at the ESICM LIVES Congress in Lisbon.

          The abstract reflects the collaborative work of partners across the consortium and highlights INDICATE’s ongoing efforts to develop robust approaches for evaluating federated AI in intensive care. More about this milestone can be found here.

          Building the INDICATE architecture

          Jan van den Brand (Technical Lead INDICATE) and Arie de Haan (Principal Architect) presented an overview of the project’s enterprise architecture, explaining how it provides the foundation for the development of the INDICATE ecosystem.

          Using the analogy of constructing a building, they demonstrated how a shared architectural blueprint ensures that all technical components developed by different work packages fit together into one coherent platform. The presentation also highlighted the roadmap towards the three development plateaus:

          • Plateau 1: enabling federated observational studies (currently nearing completion);
          • Plateau 2: supporting federated machine learning training;
          • Plateau 3: enabling AI model inference for future clinical decision support.

          Partners were invited to contribute ideas and requirements during the current design phase, when changes can still be incorporated efficiently.

          Supporting data providers

          Celia Álvarez Romero (Wp2) introduced the next activities of the Data Provider Support Workgroup, which has been established to provide practical guidance to participating hospitals during the onboarding process.

          Between July and October, each data provider will be invited to a dedicated one-to-one onboarding interview to review progress, discuss technical or organisational challenges and define an onboarding roadmap. Institutions are encouraged to participate with representatives from different disciplines, including project management, IT, data engineering, legal and clinical teams.

          Towards one clear onboarding journey

          Maarten Ligtenberg (Wp5) presented ongoing work to simplify the onboarding process for data providers and the development  of the structured onboarding flow within the INDICATE Wiki.

          Looking ahead

          The meeting concluded with appreciation for the contributions of all work packages and a special thank you to Aliza Bos (project administrator) for her work within the coordination team before moving to another European project.

          With the architecture progressing, onboarding activities accelerating and preparations underway for the September consortium meeting, INDICATE continues to build towards a secure and scalable European infrastructure for federated intensive care research.

          INDICATE Consortium Meeting in Rome, Italy.

          The official INDICATE Consortium Meeting will take place from 14 to 16 September 2026 in Rome, Italy, hosted by our partner Fondazione Policlinio Universitario Agostino Gemelli IRCCS.

          As we reach the halfway point of the project, this meeting will focus on reflection and forward planning. We will review key achievements, such as the first use case going live, as well as the main challenges, including updates on communication and education.

          Looking ahead, we will focus on the second half of the project. The sessions will cover upcoming deliverables and milestones, progress on data provider onboarding, and the next steps in establishing the legal entity that will operate the INDICATE infrastructure.

          
Practical information

          Date: 14-16 September
          
Location: Italy, Rome

          Venue: Fondazione Policlinico Universitario Agostino Gemelli IRCCS, Largo Agostino Gemelli 8, 00136 Roma, Italy


          Register here!

          INDICATE abstract accepted for presentation at ESICM LIVES 2026

          We are pleased to announce that the INDICATE study abstract, “A Multi-Dimensional Assessment Framework for Evaluating AI and Federated Data Training in Intensive Care: The INDICATE Study” has been accepted as an e-Poster at the ESICM LIVES 2026 Congress in Lisbon.

          The abstract will be presented by Maria Theodorakopoulou (the Lead of Work Package (WP) 5) during the Data Science 3 session on Wednesday, 14 October 2026, in Lisbon. In addition to the presentation, the abstract will be published in the online supplementary issue of Intensive Care Medicine Experimental, the official journal of ESICM.

          This achievement represents an important milestone for WP 5 and reflects the collaborative efforts of all partners who are contributing to the study. Congratulations to everyone involved.

          Consortium members attending ESICM LIVES 2026 are encouraged to attend the e-poster presentation and support this important WP5 deliverable. Your presence will help showcase the INDICATE project’s contribution to advancing AI and federated data training in intensive care to the international critical care community.

          We look forward to presenting the INDICATE study at ESICM LIVES 2026.