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INDICATE Newsletter October 2026

INDICATE Consortium Meeting Rome

The INDICATE Consortium Meeting, hosted by Fondazione Policlinico Universitario Agostino Gemelli IRCCS in Rome taking place from Monday September 14 till Wednesday September 16, marked an important milestone in the journey from developing the INDICATE infrastructure concept to putting it into practice and building a sustainable future beyond the project.

Over three days, consortium partners came together to take stock of progress and lessons learned, align on the implementation pathway, and translate the project’s ambitions into concrete actions. The meeting equipped partners to act as INDICATE ambassadors, with a shared understanding of the end-to-end journey for data providers, data users and research projects, as well as the actions needed to support the successful implementation and transition of the infrastructure.

INDICATE Communication Network meeting: progress and achievements

The INDICATE Communication Network Meeting, organised by Work Package 5, took place on 9 September 2026.

A key contribution to the meeting was a presentation by Arie de Haan (Principal Architect INDICATE) on building the INDICATE architecture.

Ready, set, access! Preparing for responsible data use

Led by Bert Cappelle (Ghent University Hospital), the second session of the Legal Framework training sessions, provided participants with a practical overview of the legal and organisational framework required before researchers can access health data.

Rather than focusing on legislation alone, the training demonstrated how legal, ethical and technical safeguards work together to enable secure and responsible data sharing across Europe.


Metadata standards, cataloguing workflows and examples of best practices

The fifth INDICATE training session brought together participants from across the consortium to understand the role of metadata in supporting interoperability, data discovery, and federated research across institutions.

INDICATE consortium reviews progress and prepares for next project phase

On 9 July, the INDICATE consortium came together for its monthly online update meeting to discuss project progress, upcoming milestones and the next steps towards expanding the INDICATE platform.


INDICATE abstract accepted for presentation at ESICM LIVES 2026

We are pleased to announce that the INDICATE study abstract, “A Multi-Dimensional Assessment Framework for Evaluating AI and Federated Data Training in Intensive Care: The INDICATE Study” has been accepted as an e-Poster at the ESICM LIVES 2026 Congress in Lisbon.

The abstract will be presented by Maria Theodorakopoulou (the Lead of Work Package (WP) 5) during the Data Science 3 session on Wednesday, 14 October 2026, in Lisbon. In addition to the presentation, the abstract will be published in the online supplementary issue of Intensive Care Medicine Experimental, the official journal of ESICM.

MIE 2026: “Standardizing ICU Data Across Europe: the INDICATE Minimal Data Dictionary”

On Monday 25 May 2026, Boris Delange (MD, Medical Informatics & Intensive Care, University Hospital of Rennes), presented the INDICATE Minimal Data Dictionary to the European medical informatics community during MIE 2026 (Medical Informatics Europe), held in Genova, Italy (25-28 May 2026).


How can we prepare people for federated health data research?

How do we ensure that clinicians, researchers, nurses, legal experts, and data engineers have the knowledge, skills, and confidence needed to participate in federated health data research? On June 10, the INDICATE Training and Education Workgroup met at ESICM in Brussels to discuss one of the most important ingredients for successful federated data research: people.

Advancing trustworthy data through ETL validation and data quality assessment

On 21 May, the fourth INDICATE training session brought together participants from across the consortium to explore one of the most critical aspects of data integration: ensuring data quality throughout the ETL (Extract, Transform, Load) process.

The INDICATE Help Center is now live!

The help center is specifically set up for data providers who have technical questions related to the INDICATE portal. By submitting a ticket, they can easily reach the right support and receive focused and efficient assistance with the technical questions.


Supporting data providers

The next activities of the Data Provider Support Workgroup have been established to provide practical guidance to participating hospitals during the onboarding process.

Each data provider will be invited to a dedicated one-to-one onboarding interview to review progress, discuss technical or organisational challenges and define an onboarding roadmap. Institutions are encouraged to participate with representatives from different disciplines, including project management, IT, data engineering, legal and clinical teams.


Towards one clear onboarding journey

The Training & Education Working Group and Data Provider Support Working Group are collaborating to consolidate onboarding information into a single, structured onboarding journey.

The objective is to reduce fragmentation of documentation and make onboarding requirements easier to navigate. The onboarding flow will provide guidance on: 

  • Study participation readiness.
  • Stakeholder identification and engagement. 
  • Data governance and compliance requirements. 
  • Technical preparation. 
  • ETL processes and OMOP conversion. 
  • Connection to the INDICATE infrastructure. 

Romain Chor

AP-HP

I am based in Paris, France. I hold a M.Sc. in Statistics and a Ph.D. in Statistical learning. I previously worked as a research engineer in Gustave Eiffel University.

My background includes several areas of applied Mathematics such as Statistics, Statical learning, Optimization and Information Theory.

What do I do in INDICATE?

I joined INDICATE as a research engineer in Statistics, to contribute to WP6 use case 2, in Lariboisière hospital (APHP, France). In particular, my work focuses on early detection of organ failure based on time series data.

Find out more about Romain’s contributions to INDICATE in his bio.

Get in contact!

e: romain.chor@yahoo.fr


Share your bio with us!

We are keen to post a bio of everyone involved in this project on the website and in the newsletter as well!

Please share:

  • Who am I?
  • What do I do?
  • What am I up to during INDICATE? Connected to which WP? Which cases do I work on?
  • What motivates me to be part of INDICATE?
  • What do I expect to accomplish within INDICATE?
  • How does my background or expertise contribute to the goals of INDICATE?

Please share your bio and picture with: info@indicate-europe.eu


INDICATE Internal Events


Dec 1-2

Training & Education Workgroup

In-person meeting

Location: ESICM Headquarters, Brussels

External Events

Oct
10-14

ESICM LIVES 2026

39th Annual Congress

Date: 10-14 October, 2026

Location: Lisbon, Portugal

At LIVES 2026 in Lisbon, the innovative formats of on-site sessions and activities will foster networking and knowledge exchange among colleagues and friends. The scientific programme will feature a diverse array of formats, including dynamic debates, case presentations, interactive lectures, symposia, and case discussions, among many others!

During the congress, the INDICATE study abstract, “A Multi-Dimensional Assessment Framework for Evaluating AI and Federated Data Training in Intensive Care: The INDICATE Study”will be presented by Maria Theodorakopoulou (the Lead of Work Package (WP) 5) during the Data Science 3 session on Wednesday, 14 October 2026, in Lisbon.

INDICATE will be represented during ESICM LIVES in the thematic session “INDICATE: Connecting Data in European Intensive Care.” The session will be moderated by Maria Theodorakopoulou (WP5 Lead) and Christian Jung (Co-PI INDICATE), with Michel van Genderen (Co-PI INDICATE).


Oct
13-14

Mobilizing Computable Biomedical Knowledge (MCBK) Global Meeting 2026

Location: Online

The 2026 Mobilising Computable Biomedical Knowledge (MCBK) Global Meeting will take place online on 13 and 14 October, bringing together the international community made up of representatives from academia, the scientific community and the public sector who work together to ensure that biomedical knowledge in computable format is easy to find, accessible, interoperable and reusable.

Do you have a special request? Would you like to share news or a publication? Would you like to be (digitally) connected to a certain person? Did you speak or went to an event related to INDICATE or INDICATE-subjects? Please feel very welcome to share your questions or input with: info@indicate-europe.eu

When sharing your news, please make sure to attach your photos/images or figures and always make sure when people are visible, you have their permission to use the pictures.

Below with the format you can use to share your news with us: 

  • What is the purpose of your news? 
  • What title can we use?
  • Who attended (names, roles, if related to INDICATE meetings/events)?
  • What were the main topics discussed or key findings?
  • Were any follow-up actions or appointments agreed upon?
  • Is there anything special or noteworthy?

Deadline for next newsletter submissions:

  • 27 November, 2026

Upcoming deadline: November 2026

Milestones

WP2 | MS6All data elements for the use cases (WP6) are defined (SAS)
WP6 | MS18Public release of the MIMIC-EU federated database (UDUS)

All consortium partners can access the official presentation templates and branding materials for INDICATE via the INDICATE Wiki. There you can find the PowerPoint template, Word template, Teams background, logo files, branding guidelines, and icons. Everything you need to ensure consistent and professional project communication.

Michel van Genderen
Co-lead INDICATE
e: m.vangenderen@erasmusmc.nl

Christian Jung
Co-lead INDICATE
e: Christian.Jung@med.uni-duesseldorf.de

Lisanne van Prooyen Schuurman
Project Manager
e: e.vanprooyenschuurman@erasmusmc.nl

Jan van den Brand
Technical Lead
e: a.vandenbrand@erasmusmc.nl

Logo Assistance Publique Hospitaux de Paris
Bērnu klīniskā universitātes slimnīca Valsts Sia (Children’s Clinical University Hospital)
Logo Cradeq B.V.
Logo Erasmus Universitair Medical Center Rotterdam
European Federation of Critical Care Nursing Association
Logo Fraunhofer Gesellschaft Zur Forderung der Angewandten Forschung
Logo Heinrich-Heine-Univeristaet Duesseldorf - universiteitsziekenhuis Dusseldorf
Logo HELLENIC SOCIETY OF INTENSIVE CARE MEDICINE
Logo Servicio Madrileno de Salud (Hospital Universitario 12 de Octubre)
Logo logo ervicio Andaluz de Salud (Virgen del Rocío University Hospital)
Logo INSTITUT CATALA DE LA SALUT
Logo INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE
Logo Region Stockholm (Karolinska University Hospital)
logo KPMG Advisory NV
Logo Medizinische Universitat Innsbruck
Logo Medizinische Universitaet Wien
Logo Paracelsus Medizinische Privatuniversitat Salzburg
Logo Sorbonne Université (INSERM-SU)
Logo Universitair Medisch Centrum Utrecht
Logo Ghent University Hospital
Logo Logo Univerisitatsmedizin Greifswald Kopperschaft Des Offentlichen Rechts
Logo Université de Rennes

Endorsed by:


Get in contact via e-mail:
Email address: info@indicate-europe.eu
Email address: support@indicate-europe.eu
Email address: indicate@erasmusmc.nl




Day 3 in Rome: from a project to a sustainable European infrastructure

After two days of reflecting, demonstrating and working hands-on with the INDICATE infrastructure, today we turned our attention to the future: How do we sustain INDICATE and build an organisation that can continue to grow beyond the project?

Prof. Dr. Christian Jung opened with a reflection on how far we have come. From writing the original grant (an intense process!) to today, where the project really starts to materialise in a very valuable cooperation: hospitals are preparing for onboarding, the federated data platform is taking shape, and potential new partners are already coming forward.

Dr. Michel van Genderen: “We are not only building a platform. We are building trust.”

Trust between hospitals, researchers and partners. Trust that data can be used responsibly. And trust within a community that is getting to know each other better and growing together. A community of people with expertise, commitment and trust in one another. No single party can build this alone.

🌍 So how do we take that community beyond the project?

Today Hylke Kingma from KPMG introduced the ambition for INDICATE beyond May 2028: build a sustainable entity supporting a growing ecosystem of data providers, data users and research projects. Hylke: “Hospitals need to move from local data capture to ecosystem-ready data reuse. ”

The work hospitals are doing today to prepare for INDICATE can therefore also help them prepare for the European Health Data Space and a future in which health data can be reused securely and responsibly across a wider European ecosystem.

Mark Driessen and Anouk Kruiswijk from KPMG then took us further into what that the future organisation could look like to support sustained operations after the end of the project phase.

Moving from a European project to sustainable and scalable operations means making choices about governance, organisation and financing. It requires a solid business model, clear roles and an organisation that can evolve as the number of participants, services and research projects grows.

It also requires a clear value proposition: why should hospitals, data users and partners join INDICATE and why should they remain part of the community?

Anouk also gave us an important reminder: “Building a sustainable organisation is not the goal in itself. It is the means to continue creating impact. The ultimate goal remains what it has been from the start: improving healthcare and outcomes for patients.”

That feels like a fitting perspective for our final day in Rome!

Over these three days, we moved from reflecting on two years of progress, to putting federated learning and onboarding into practice, and finally to asking how we can make what we are building last.

To sum up: 

  • The platform is materialising
  • The community is growing
  • The trust is being built

Now it is time to build the future around it. 🇪🇺

Day 2 in Rome: federated learning – putting the vision into practice

After yesterday’s reflections on two years of INDICATE, today was all about putting the vision into practice! 

Prof. Dr. Christian Jung opened the second day of the INDICATE Consortium Meeting with a live demonstration of the INDICATE platform before moving on to the central question of the day: What is federated learning, and how to make it work across hospitals in Europe?

Jan van den Brand took us through the federated data platform, how it works and the roadmap towards training the very first federated machine learning model on INDICATE infrastructure. The principle sounds simple, but has major implications for how we can collaborate: Data stays. Insights travel. 

Dr. Chong Shen Ng of Flower Labs introduced Flower and showed us how collaborative AI works in practice. From the difference between centralised and decentralised AI to the architecture behind federated learning, his live demo gave us a look under the hood of the technology enabling this new way of working.

Joost Huiskens from Microsoft Netherlands brought another important perspective: “Clinicians do not interact with models, they interact with solutions”. If we want AI to improve daily clinical practice, we need to think beyond developing good models. We need solutions that are robust, resilient, sustainable and able to fit into real clinical environments. Not only now, but also in the future. We need to think about achieving sovereignty together.

And that brings us to one of today’s second question: What does a hospital actually need to participate in INDICATE? 

With Maarten Ligtenberg, Celia Alvarez Romero, Mark Driessen, Jan van den Brand and Bert Cappelle, we moved into a hands-on onboarding workshop. Participants worked through the steps required for both data providers and data users who will be using the tools, templates and guidance being developed within INDICATE. We collected experiences, identified obstacles and used feedback from our partners to make onboarding clearer and more scalable.

This afternoon, we went from onboarding an organisation to actually starting a research project on the INDICATE platform. Marcel Giemsa from University Hospital Düsseldorf guided us through the steps to onboard on the federated data platform of INDICATE.

First the organisation is onboarded, then its users can start creating and submitting research projects.The onboarding process was shared, tested and discussed with the consortium today. The feedback gathered will help us further improve the process before making the guidance available to future data providers and users.

We then explored key practical challenges through interactive challenge tables, covering topics from data dictionary validation and sandbox requirements to scalable legal and ethical approvals, educational needs and communication ecosystem engagement.

Building a European federated infrastructure is not just about making the technology work. It is also about making it clear and practical for organisations and researchers to actually use it.

More insights from our consortium meeting tomorrow on Day 3!

Day 1 in Rome: Data stays, insight travels

Day 1 in Rome: Data stays, insight travels

Today we kicked off the INDICATE Consortium Meeting 2026 in Rome – Italy, hosted by Fondazione Policlinico Universitario Agostino Gemelli IRCCS.

We are halfway through the INDICATE project. Time to reflect on how far we have come and where we want to go next. From the soft launch in Brussels, to our first official consortium meeting in Seville in 2025, and now Rome, INDICATE has developed into a growing European community.

The main message of today was: “Data stays, insight travels.” Hospitals need to remain in control of their data. At the same time, better research and AI requires access to larger volumes of high-quality health data. INDICATE’s federated infrastructure is designed to bring those two needs together.

Prof. Dr. Dr. Christian Jung, INDICATE PI, reflected on the progress made during the first half of the project and shared some of the achievements so far. 

Dr. Michel van Genderen highlighted that INDICATE is not just about building a product or a platform. It will work because we are building a community and we can only achieve our ambitions if we do it together.

Our work is part of a much bigger European ambition.

Our EU Project Officer Erica Martinelli shared the European perspective on AI, with a clear objective: “Make Europe the AI continent in the world!” It requires computing capacity, appropriate regulation, common European Data Spaces and AI skills for healthcare professionals, and combining innovation with trust.

We also received valuable perspectives from our external experts.

Emma-Jane Spencer, from our External Ethics Advisory Board, challenged us to keep ethics at the centre as the technology develops with continued attention to privacy, bias, explainability, data diversity, patient involvement and governance. 

From Prof. Filip Haegdorens we heard that data on staffing and workload can provide crucial insights into quality of care and patient outcomes and should be added to the INDICATE data dictionary. Michael Beil challenged us to think about how AI will change clinical decision-making and workflows.

And David van Laere brought the discussion back to the bedside. Ultimately, AI models need to become tools clinicians can actually use. As he put it: “Hospitals, data infrastructures, and companies need to work together to create an ecosystem where risks, revenue and success are shared, because ultimately we all want the same: to save and improve patients’ lives.” That is a powerful reminder of where all this work needs to lead.

Finally, our Work Package Leads shared what has already been achieved across INDICATE from common data models to legal and ethical frameworks, sustainable governance, a user portal and technical infrastructure to run federated analyses, education and communication, and our clinical use cases as demonstrators.

Just as valuable were the lessons learned: pilot early and often, coordinate across work packages, support data providers, recognise dependencies and never underestimate the importance of data quality.

🎉 And after reflecting on two years of progress, there was also a moment to celebrate what we have achieved together, celebrating the confetti moments of the day! A fitting way to mark how far this community has come.

Tomorrow, we move from reflection to implementation: How can we make the infrastructure sustainable beyond the end of the project? Can it support other clinical areas beyond intensive care, such as cardiology and trauma? And how can we make it easier for new hospitals to join?

From data to insights. From infrastructure to clinical impact. On to Day 2!

INDICATE Communication Network meeting: progress and achievements

The INDICATE Communication Network Meeting, organised by Work Package 5, took place on 9 September 2026.

A key contribution to the meeting was a presentation by Arie de Haan (Principal Architect INDICATE) on building the INDICATE architecture. Arie presented an overview of the project’s enterprise architecture and explained how this provides the foundation for the development of the INDICATE ecosystem. Using the analogy of constructing a building, he illustrated how a shared architectural blueprint enables the different technical components developed across the work packages to come together as one coherent platform.

Maaike van Zuilen (INDICATE Communication advisor) presented an overview of the communication work carried out within INDICATE. Her presentation highlighted the communication activities undertaken throughout the project, the materials and resources developed, and the progress and achievements made so far. She also reflected on how these activities have supported the visibility of INDICATE, strengthened engagement with stakeholders and contributed to communicating the project’s objectives, developments and results to a wider audience.

The meeting further provided a valuable opportunity for participants to exchange experiences and share perspectives on communicating INDICATE within their respective organisations. 

The INDICATE Help Center is now live!

We’re happy to announce that the INDICATE Help Center is now live!

The help center is specifically set up for data providers who have technical questions related to the INDICATE portal. By submitting a ticket, they can easily reach the right support and receive focused and efficient assistance with the technical questions.

You can access the help center directly via here or the button on the INDICATE website.