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Metadata standards, cataloguing workflows and examples of best practices

The fifth INDICATE training session brought together participants from across the consortium to understand the role of metadata in supporting interoperability, data discovery, and federated research across institutions.

Led by María González-Lopez and Paloma Bravo del Cid from the Computational Health Informatics Group at Virgen del Rocío University Hospital, the training focused on metadata standards, cataloguing workflows, and best practices within the INDICATE framework.

A key message throughout the training was that metadata is what makes health data discoverable, understandable and reusable across institutions. Participants explored how researchers often encounter datasets from multiple hospitals without knowing how the data were collected, whether they can be combined or even if they are allowed to access them. 

Metadata provides the answers to these questions by describing what a dataset contains, how it was created, under which conditions it can be used and how it can be accessed. Rather than being administrative overhead, metadata forms the foundation of the INDICATE federated catalogue and enables hospitals and researchers to collaborate without sharing patient-level data.

The session concluded with interactive breakout rooms, where participants took on the role of the local INDICATE data provider team for a fictional university hospital. Working with a realistic case study, they assessed whether the hospital’s existing OMOP database, ETL process and ICU data were ready to support a federated study on early organ failure in patients with suspected sepsis. 

By reviewing governance, metadata, data quality and technical readiness, each group determined whether the hospital was ready to participate or which improvements were still needed. The exercise highlighted that successful federated research requires more than available data. It depends on well-documented metadata, robust data quality and close collaboration between clinical, technical and governance experts.

INDICATE Communication Network meeting

The INDICATE Communication Network Meeting, organised by Work Package 5, will take place on 9 September 2026, from 12:30 to 13:30 CEST.

During the meeting, participants will receive the latest updates on the development of the INDICATE platform, educational activities, and the communication materials available to support the project.

A key part of the meeting will be a presentation by Arie de Haan, Principal Architect of INDICATE, on building the INDICATE architecture. Arie will provide an overview of the project’s enterprise architecture and explain how it forms the foundation for the development of the INDICATE ecosystem. Using the analogy of constructing a building, the presentation will illustrate how a shared architectural blueprint ensures that the technical components developed across different work packages fit together into one coherent platform.

The session will also offer an opportunity to exchange experiences and discuss how INDICATE is being communicated within different organisations. Participants are encouraged to share their ideas and provide feedback on the communication materials and support they would find most valuable.

Want to attend the meeting? Please let us know by contacting us via info@indicate-europe.eu.

Programme INDICATE Consortium Meeting 2026

Programme

INDICATE Consortium Meeting 2026

The official Consortium Meeting of the INDICATE project is taking place from 14 till 16 September 2026 in Rome, Italy. This meeting will be graciously hosted by our partner, Fondazione Policlinio Universitario Agostino Gemelli IRCCS. 

As we are in September 2026, approximately halfway through the project, this meeting will focus on reflection and forward planning. We will review key achievements, such as the first use case going live, as well as main challenges, including updates on communication and education.

Looking ahead, we will focus on the second half of the project. The session will zoom in on upcoming deliverables and milestones, progress on data provider onboarding, and the next steps in establishing the legal entity that will operate the infrastructure.

Practical information

Date: 14-16 September
Venue

  • Room 202, School of Economics
  • Enter through the UCSC campus
  • Use this address to arrive at the location: Largo Francesco Vito 1, 00168 Roma
    • The campus is located in the north-west side of Rome and it includes the Policlinico (the Hospital itself) and the University. For the INDICATE consortium meeting, please use the University Entrance to find your way to the conference room – Room 202, School of Economics on the second floor.

      Entrance address

      • Largo Francesco Vito, 1, 00168 Roma RM (University entrance)

How to get there: route

DAY 1 | Understand INDICATE: Reflect, connect and align

Monday, 14 September 2026 |  12:00 – 17:15 CEST

12.00 – 13.00

Arrival Lunch & networking 

Informal networking and introductions. 

13.00 – 13.20

Opening and welcome by the host institution

Welcome by Gemelli Hospital. Introduction to the institution’s clinical, scientific, and digital activities.

Prof. Massimo Antonelli
Fondazione Policlinio
Universitario Agostino
Gemelli IRCCS

Dr. Ambra Cerri
Fondazione Policlinio
Universitario Agostino
Gemelli IRCCS

13.20 – 13.50

Welcome & meeting goals

Align on the meeting objectives, intended outputs and three-day arc. 

Dr. Michel van Genderen
Erasmus MC

Prof. Dr. Christian Jung
University Hospital Düsseldorf


13.50 – 14.10

European Commission perspective

Clarify expectations for INDICATE’s second phase and its longer-term contribution to the European programme.

Erica Martinelli 
EU Project Officer 

14.10 – 14.30

Ethical review

External ethics perspective on project governance and compliance. 

Dr. Emma-Jane Spencer 
TU Delft

14.30 – 15.00

Coffee break

15.00 – 16.00

External Expert Advisory Board

External perspectives on INDICATE project development, implementation risks and opportunities. 

Prof. Filip Haegdorens
University of Antwerp 

Dr. Michael Beil 
NHS Highland
The Hebrew University

Dr. David van Laere
Innocens BV

16.00 – 16.45

Two years of INDICATE 
Achievements, lessons learned & key focus points next phase. Concise work-package highlights:  

Work Package 1: Project coordination

Lisanne van Prooyen Schuurman
Erasmus MC


Work Package 2: Common data models and vocabularies

Data Management Plan (D2.1), INDICATE minimal dataset and data dictionary

Boris Delange
CHU Rennes

Data provider Handbook

Celia Alvarez Romero
Andalusian Health Service (SAS)


Work Package 3: Governance, Business Models and Legal and Ethical Framework

ELSI and Data Protection Impact Assessment

Jan van den Brand
Erasmus MC 

Sustained-operations roadmap

Mark Driessen
KPMG

Anouk Kruiswijk
KPMG


Work Package 4: Technical infrastructure

Plateau 1 MVP

Bert Cappelle
UZ Ghent


Work Package 5: Dissemination, Exploitation, and Communication

Knowledge-transfer platform and educational tracks

Maria Theodorakopoulou
HSICM

Maarten Ligtenberg
Cradeq

Communication strategy and activities

Maaike van Zuilen
Philogirl


Work Package 6: Clinical Demonstrations

Live demo of Quality-Benchmarking Use Case

Marcel Giemsa
University Hospital
Düsseldorf

Falk von Dincklage
Universitätsmedizin
Greifswald

Gregor Lichtner
Universitätsmedizin
Greifswald

Bert Cappelle
UZ Gent

16.45 – 17.00

Strategic start of INDICATE phase 2

A consortium-level overview of the INDICATE ecosystem, including its working groups, workstreams, work packages, and advisory boards.

The session will clarify how these components interact and jointly support the strategic direction, governance, and implementation of the project’s next phase. 

Jan van den Brand
Erasmus MC

Lisanne van Prooyen-Schuurman
Erasmus MC

17.00 – 17.15

Decisions, actions & confetti moment

Reflection from INDICATE PI Christian Jung on the first half of the project. Confirm the day’s key messages and summarize the decisions, owners, and next steps. 

Prof. Dr. Christian Jung
University Hospital Düsseldorf

20.00

Consortium dinner

Ristorante del Frate
Via degli Scipioni, 118 – Roma
San Peter area

Day 2 | Implement INDICATE: Solve challenges together

Tuesday, 15 September 2026  |  09:00-17:00 CET

08.30 – 09:00

Walk-in coffee

    09.00 – 09:15

    Opening Day 2 & Recap of Day 1

    Prof. Dr. Christian Jung
    University Hospital Düsseldorf

    09.15 – 09:45

    Federated Learning, what is it? 

    Steps hospitals need to take to prepare for participation in federated learning initiatives such as INDICATE 

    Introduction to federated learning concepts as foundation for INDICATE platform approach. Explanation of preparatory steps hospitals must take to participate in a federated learning initiative.

    Jan van den Brand
    Erasmus MC

    Pedro Mesa
    Flower Labs

    Dr. Chong Shen Ng
    Flower Labs

    Dimitris Stripelis
    Flower Labs

    Joost Huiskens
    Microsoft,
    the Netherlands

    09.45 – 10:00

    Phase 2 programme planning 

    Frame the implementation phase: Overall project timeline for infrastructure design and implementation, onboarding and support, training and education, use cases, legal entity set-up, and grant obligations. 

    Lisanne van Prooyen Schuurman
    Erasmus MC

    10.00 – 10.30
    Timeline & dependency workshop

    Each group discusses: potential risks, dependencies, mitigation strategies specific to their workstream. Purpose: Ensure all participants engage deeply with the timeline and understand interdependencies, rather than passively listening to presentations.

    Jan van den Brand
    Erasmus MC

    Marcel Giemsa
    University Hospital
    Düsseldorf

    Lisanne van Prooyen Schuurman
    Erasmus MC

    10.30 – 11.00
    Coffee break
    11.00 – 11.15

    Discussion of timeline workshop output

    Plenary recap of key risks and mitigation strategies identified during morning workshop. 

    11.15 – 12.30

    Data Provider and Data User Support

    Participants work through the complete onboarding process step-by-step using provided templates and guidance materials.

    Facilitators guide participants through each stage – Participants begin documenting their own organization’s onboarding plan – Questions addressed in real-time – Feedback collected on workflow clarity and resource adequacy.

    Celia Alvarez Romero
    Andalusian Health
    Service (SAS)

    Mark Driessen
    KPMG

    Maarten Ligtenberg
    Cradeq

    Jan van den Brand
    Erasmus MC

    Bert Cappelle
    UZ Gent

    12.30 – 13.30

    Lunch

    13.30 – 13.45

    Recap Data Provider and Data User onboarding workshop

    13.45 – 15.00

    INDICATE project workflow (use case) presentation, demo and workshop

    The standard process for conducting a project on the INDICATE platform, including an overview of the support resources currently available through the INDICATE Knowledge Platform. 

    Marcel Giemsa
    University Hospital Düsseldorf

    15.00 – 15.30

    Coffee & Tea break

    15.30 – 15.45

    Recap of the INDICATE project workflow workshop

    15.45 – 16.15

    Challenge tables 
    Parallel implementation sessions

    WP2: Data Dictionary Tool demo and concepts mapping validation

    WP4/WP6: Sandbox Requirements & Specifications

    • What does a sandbox need to include to support use case development and testing?  

     WP6: Scalability of Legal & Ethical Approvals

    • How to efficiently scale legal and ethical review processes for growing number of research projects?  

    WP5: Training Needs Assessment

    • What training is required for different stakeholder groups (data providers, data users, ethical reviewers, etc.)?   

    WP5 Communication – Ecosystem Engagement Strategy

    • How to effectively communicate with prospective data providers and use cases?  

    Each challenge table will be led by relevant WP experts. Small groups work on specific topics and report back key insights.

    16.15 – 16.45

    Recap Challenge tables 

    Summary of gathered feedback on challenge topics and project action items. 

    16.45 – 17.00

    Consortium priorities & confetti moment

    Dr. Michel van Genderen
    Erasmus MC

    18.00

    Walking tour & dinner

    Starting point walking tour Rome:

    Via della Stamperia, 64, 00187 Roma (Close to Fontana di Trevi)

    Ending at Ristorante Ozio – Via Orazio, 21, 00193 Roma RM. – Dinner starts at 20.00.

    See: https://oziorestaurant.it/

    DAY 3 | Sustain INDICATE: Build the future organisation

    Wednesday, 16 September 2026 |  09:00-13:00 CET

    08.30 – 09:00

    Walk-in coffee

      09.00 – 09:15

      Opening Day 3 & Recap Day 2

      Dr. Michel van Genderen
      Erasmus MC

        09.15 – 09:45

        INDICATE beyond the project

        Introduce the ambition for a sustainable entity that supports a growing ecosystem of data providers, data users and research projects.

        Hylke Kingma
        KPMG

          09.45 – 10:15

          Governance & organisation

          Discuss the transition to an independent organisation; recap the European legal-entity analysis and rationale for an SCE; review EDIC uncertainties, post-project roles and collaboration mechanisms.

          Mark Driessen
          KPMG

          Anouk Kruiswijk
          KPMG

          10.15 – 11:00

          Business Model Workshop | Part 1 

          Discuss the transition to an independent organisation; recap the European legal-entity analysis and rationale for an SCE; review EDIC uncertainties, post-project roles and collaboration mechanisms.

          Mark Driessen
          KPMG

          Anouk Kruiswijk
          KPMG

          Jan van den Brand
          Erasmus MC

          11.00 – 11:30

          Coffee break

            11.30 – 12:15

            Business Model Workshop | Part 2 

            Consolidate the canvas and resolve the most important themes from Part 1 in a plenary discussion. 

            Mark Driessen
            KPMG

            Anouk Kruiswijk
            KPMG

            Jan van den Brand
            Erasmus MC

              12.15 – 12:45

              Partner action planning

              Each organization completes its organization-specific implementation plan identifying:  

              • Key roles and responsibilities within the organization  
              • Concrete actions to be taken after Rome (based on 3 workshops) 
              • Ownership assignments 
              • Timeline for completion  
              • Success metrics

              Dr. Michel van Genderen
              Erasmus MC

                12.45 – 13:00

                Closing remarks

                The meeting’s key decisions and outputs will be summarised, together with concrete next steps for the consortium.

                Dr. Michel van Genderen
                Erasmus MC

                Prof. Dr. Christian Jung
                University Hospital Düsseldorf

                  Departure

                  Closing Lunch

                  Informal close and departures

                    Venue – Fondazione Policlinico Universitario Agostino Gemelli IRCCS

                    Largo Agostino Gemelli, 8, Roma RM, Italië
                    00136 Roma

                    Italy

                    Website: https://www.policlinicogemelli.it/en/

                    How to reach the venue:
                    The campus is located in the north-west side of Rome and it includes the Policlinico (the Hospital itself) and the University. For the INDICATE consortium meeting, please use the University Entrance to find your way to the conference room – Room 202, School of Economics:

                    Entrance address:

                    • Largo Francesco Vito, 1, 00168 Roma RM (University entrance)

                    Find more details about the venue here.

                    Continue reading

                    INDICATE consortium reviews progress and prepares for next project phase

                    On 9 July, the INDICATE consortium came together for its monthly online update meeting to discuss project progress, upcoming milestones and the next steps towards expanding the INDICATE platform.

                    Preparations for the Rome Consortium Meeting

                    The coordination team shared the latest updates on project management and preparations for the upcoming consortium meeting in Rome, taking place from 14–16 September 2026. More than 50 consortium members have already registered, with over 35 participants expected to attend in person. More about the Rome meeting can be found here.

                    Partners were encouraged to join the meeting onsite, as the programme will focus on preparing the next phase of INDICATE and strengthening collaboration across work packages. The consortium also received an update on the first reporting period. While the technical report has been finalised, the financial review is currently being completed in close collaboration with the European Commission.

                    Work Package 5 abstract accepted

                    A major milestone was celebrated during the meeting: the abstract entitled “An Assessment Framework for Evaluating AI and Federated Learning Training in Intensive Care” has been accepted for presentation at the ESICM LIVES Congress in Lisbon.

                    The abstract reflects the collaborative work of partners across the consortium and highlights INDICATE’s ongoing efforts to develop robust approaches for evaluating federated AI in intensive care. More about this milestone can be found here.

                    Building the INDICATE architecture

                    Jan van den Brand (Technical Lead INDICATE) and Arie de Haan (Principal Architect) presented an overview of the project’s enterprise architecture, explaining how it provides the foundation for the development of the INDICATE ecosystem.

                    Using the analogy of constructing a building, they demonstrated how a shared architectural blueprint ensures that all technical components developed by different work packages fit together into one coherent platform. The presentation also highlighted the roadmap towards the three development plateaus:

                    • Plateau 1: enabling federated observational studies (currently nearing completion);
                    • Plateau 2: supporting federated machine learning training;
                    • Plateau 3: enabling AI model inference for future clinical decision support.

                    Partners were invited to contribute ideas and requirements during the current design phase, when changes can still be incorporated efficiently.

                    Supporting data providers

                    Celia Álvarez Romero (Wp2) introduced the next activities of the Data Provider Support Workgroup, which has been established to provide practical guidance to participating hospitals during the onboarding process.

                    Between July and October, each data provider will be invited to a dedicated one-to-one onboarding interview to review progress, discuss technical or organisational challenges and define an onboarding roadmap. Institutions are encouraged to participate with representatives from different disciplines, including project management, IT, data engineering, legal and clinical teams.

                    Towards one clear onboarding journey

                    Maarten Ligtenberg (Wp5) presented ongoing work to simplify the onboarding process for data providers and the development  of the structured onboarding flow within the INDICATE Wiki.

                    Looking ahead

                    The meeting concluded with appreciation for the contributions of all work packages and a special thank you to Aliza Bos (project administrator) for her work within the coordination team before moving to another European project.

                    With the architecture progressing, onboarding activities accelerating and preparations underway for the September consortium meeting, INDICATE continues to build towards a secure and scalable European infrastructure for federated intensive care research.

                    INDICATE Consortium Meeting in Rome, Italy.

                    The official INDICATE Consortium Meeting will take place from 14 to 16 September 2026 in Rome, Italy, hosted by our partner Fondazione Policlinio Universitario Agostino Gemelli IRCCS.

                    As we reach the halfway point of the project, this meeting will focus on reflection and forward planning. We will review key achievements, such as the first use case going live, as well as the main challenges, including updates on communication and education.

                    Looking ahead, we will focus on the second half of the project. The sessions will cover upcoming deliverables and milestones, progress on data provider onboarding, and the next steps in establishing the legal entity that will operate the INDICATE infrastructure.

                    
Practical information

                    Date: 14-16 September
                    
Location: Italy, Rome

                    Venue: Fondazione Policlinico Universitario Agostino Gemelli IRCCS, Largo Agostino Gemelli 8, 00136 Roma, Italy


                    Register here!

                    INDICATE abstract accepted for presentation at ESICM LIVES 2026

                    We are pleased to announce that the INDICATE study abstract, “A Multi-Dimensional Assessment Framework for Evaluating AI and Federated Data Training in Intensive Care: The INDICATE Study” has been accepted as an e-Poster at the ESICM LIVES 2026 Congress in Lisbon.

                    The abstract will be presented by Maria Theodorakopoulou (the Lead of Work Package (WP) 5) during the Data Science 3 session on Wednesday, 14 October 2026, in Lisbon. In addition to the presentation, the abstract will be published in the online supplementary issue of Intensive Care Medicine Experimental, the official journal of ESICM.

                    This achievement represents an important milestone for WP 5 and reflects the collaborative efforts of all partners who are contributing to the study. Congratulations to everyone involved.

                    Consortium members attending ESICM LIVES 2026 are encouraged to attend the e-poster presentation and support this important WP5 deliverable. Your presence will help showcase the INDICATE project’s contribution to advancing AI and federated data training in intensive care to the international critical care community.

                    We look forward to presenting the INDICATE study at ESICM LIVES 2026.